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NDSS Joins National Consortium to Create Important COVID-19 & Down Syndrome Resource

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Resources for Caregivers

Visit our Caregiver Resources page for tips, ideas, and fact sheets here.

COVID-19 Vaccine Resources

Visit our page here. We will update as we learn more about the COVID-19 vaccine and Down syndrome.

Educational Resources

Visit our Educational Resources page for tips, ideas, and fact sheets to support your students here.

COVID-19 Webinars

View upcoming and past NDSS COVID-19 webinars here.

Additional Resources

  • Learn how to tell the difference between COVID-19, the flu and RSV here.
  • The Down Syndrome Medical Interest Group has released guidance on the continued usage of masks for individuals with Down syndrome.
  • The CDC has information on COVID for individuals with intellectual disabilities and their caregivers.
  • We have developed a COVID-19 one pager with helpful information about the virus and tips for staying healthy
  • NDSS has produced a COVID-19 and flu factsheet to keep you and your family healthy during flu season and the pandemic
  • View NDSS COVID-19 Employment Tips here
  • Support self-advocate small businesses here
  • Please visit this CDC page for additional information on COVID-19
  • View the Portuguese COVID-19 fact sheet here
  • Visit the LuMind IDSC COVID-19 and Down Syndrome page
  • COVID-19 and Down syndrome Podcast: What you need to know from pediatrician, Dr. Abbie Smith
  • Read Kayla’s blog post on Coronavirus: from a self-advocate perspective
  • NDSS Joins National Consortium to Create Important COVID-19 & Down Syndrome Resource Press Release
  • HHS Coronavirus Resources for Individuals with Autism and other Disabilities
  • View the guidance to States/Health Care Providers On Avoiding Disability-Based Discrimination in Accessing COVID19 Treatment
  • In case you need to go to the hospital for COVID-19 related symptoms, fill out this form for physicians to help provide you with proper medical treatment (please note: this form is New York State specific, but can be a useful guide if you are in another state).
  • OCR Issues Bulletin on Civil Rights Laws and HIPAA Flexibilities That Apply During the COVID-19 Emergency
  • Special Olympics has launched School of Strength to help keep you active during quarantine
  • Tips for how to help when your loved one with Down syndrome is grieving
  • Learn more about COVID-19 Recovery Rebates with the Arc’s helpful fact sheet. Available in English and Spanish
  • Our partners at GiGi’s Playhouse NYC are offering FREE virtual programming!
  • The Dancing Without Limits team is hosting free virtual dance classes each Saturday from 2PM EDT to 3PM EDT
  • Massachusetts General Hospital’s recommendations for re-entering the community
  • The Trisomy 21 Research Society, along with many international Down syndrome orgs, have created a survey for caregivers / family members to complete so that we can learn more about how COVID-19 affects people with Down syndrome.If you care for a person with Down syndrome who has tested positive for COVID-19 or has symptoms, we invite you to complete this voluntary survey. The survey data is anonymous.
  • Complete the T21RS survey if you care for a person with Down syndrome who is affected with COVID-19
  • View the COVID-19 and Down syndrome T21RS Survey Results
  • The Department of Health & Human Services (HHS), in coordination with NIH and Operation Warp Speed, has launched a central web portal called Combat COVID (
  • *NEW* Pandemic Hotline for people with IDD, Caregivers

This page was last updated: August 30, 2021

NDSS Inclusive Education Task Force Member, Dr. Jamie McClintic, Doctor of Occupational Therapy, OTR/L, has created videos for you to use at home! The videos include exercises for speech, PT, and OT for birth through high school.